In the world of art, “ultra rare” objects are coveted, but in the world of pediatric medicine, an “ultra rare” diagnosis is devastating. It means that with so few cases, there will be very little money or research put towards finding a treatment or a cure for your child.
With less than 300 cases globally, that is the world children diagnosed with a CASK gene disorder are facing.
Enter the Ultra Rare Collection, an art auction with a twist, turning our kids’ greatest disadvantage - the rarity of CASK gene disorders - into an advantage that enables us to raise funds for research.
The foundation behind the initiative, Project CASK, is a parent-led nonprofit driving breakthroughs to treat and cure CASK gene disorders.
This unique auction is a chance to own or give the gift of a one-of-a-kind (ultra rare) artwork inspired by Project CASK's motto "Rare as unicorns. Strong as lions," and our spirit animal, the Liocorn.
100% of the profits will fund research to improve the lives of people (many of them children) affected by this severe and under-funded neurological disorder. The online auction will take place Thurs, Nov. 30th through Sun, Dec. 10th.
A gallery event will be held on Dec. 2nd at Eden Studios NYC (516 W. 26th St, Studio 5A) Doors will open at 1 PM. The reception will begin at 4 PM.
